Citizen Engagement in Cancer

The Landscape Analysis on Citizen Engagement provides a current state of play on cancer, among EU MS & ACs within ECHoS.

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Landscape Analysis

A detailed overview of over Citizen Engagement Activities

The Landscape Analysis on Citizen Engagement – Milestone 13 (MS 13) is based on a Survey which was performed to collect information on the current state of play of citizen engagement on cancer among EU member states and associated countries within ECHoS. It was developed by the Austrian National Public Health Institute GÖG within the scope of Task 6.2 – ‘Citizens’ Engagement and Participation Activities’, in work package 6 (WP6) of the ECHoS Project. The analysis reveals a complex, varied and interesting landscape of communication strategies, citizen engagement, and regulatory and funding mechanisms across different countries. While there are outstanding examples of comprehensive strategies and robust frameworks, the overall picture indicates significant disparities and areas for improvement for example of regulatory framework, transparency and monitoring. Enhancing training, transparency and monitoring, along with establishing consistent regulatory and funding mechanisms, could significantly improve the effectiveness of citizen engagement in health policy across Europe. Authors: Barbara Fröschl, Anita Gottlob, Daniela Rojatz, and Claudia Habl  

Landscape Analysis Overviev of results

Click on the map to know more about results in individual countries - the results are summarised across five thematic categories.

The “Methods and Opportunities”  section reflects an overview of the current available opportunities for citizen engagement in each country. In the Survey, this included an open end questions regarding what types of opportunities/initiatives/activities exist for citizen engagement that are related to cancer exist on a national level, as well as a  multiple choice question listing available methods (i.e., consultations, patient advisory boards etc.) and a comment option for “other”.

This section aims to show comprehensive information on several aspects related to the primary level of engagement – Information. In the Survey, questions focused on what types of communication materials are available to the general public as well as on several aspects of accesibility.

The training and education section aims to reflect the availability of enabling factors to enhance citizen engagement in the health sector in general as well as specifically in the field of cancer on a national level. It showcases the availability of current training and education materials and training opportunities on different levels,  for HCPs, patient organisations and the public.

This section of the focuses on the processes, regulations, and policy aspects related to citizen engagement in cancer. It explores the existence of regulatory frameworks for citizen representation, funding mechanisms for engagement activities, and measures to ensure transparency in decision-making processes. Additionally, it investigates monitoring practices for the impact of citizen engagement and identifies examples of good practices in this field. The goal is to understand how citizens’ voices are included and supported in shaping health and cancer-related policies and initiatives.

Finally, respondents (country experts) were asked what they consider helpful recommendations for enhancing citizen engagement in cancer?

Map Legend

  • Selected Country
  • Consortium
  • Data for this country is available
  • Other Countries

ECHoS Consortium countries

The list below shows the countries of the ECHoS Consortium.

Disclaimer - data collection

The results are based on the consolidated responses of several country experts within each country respectively, and solely reflect the country experts/respondents current state of knowledge. The information is therefore qualtitative and not exhaustive.

You can read more about the methodology in the report available above.